After a wonderful and inspiring weekend at the Omega Institute, taking a workshop called Foraging and Feasting, I came back Monday and reality set in deep like a weight on my chest. Being new to the cancer scene, I am shocked at how much disconnect there is between various facilities and Dr. offices and how on top of everything and everyone you must be. If I wasn’t so organized, persistent and such a big self advocate, no one in the system would give a hoot about my outcome.
My insurance company turned down the second request for Sloan Kettering, stating that there were surgeons within the network who could treat me. That hurt. I don’t have the time and energy to fight this further only to be nickle and dimed the whole way. Plan C… Joey and I met with a new surgeon at the Dyson Center at Vassar today. He was very reassuring and felt competent and spent a long time with us making sure all our questions were answered. They also helped me make my first appointment to see an Oncologist. I was given a few numbers for Plastic Surgeons to do the reconstruction part of my surgery (which is done at the same time as the mastectomy, thankfully, with additional steps afterwards). I don’t have a surgery date scheduled yet, but wanted to give you an update. Things are coming together… but slowly. It’s been a very anxious time for us… for me.
In closing, I’d just like to say thank you for the outpouring of love and support that came with the release of this first blog post. I was stunned by the generosity and caring that flowed in the days that followed. I was worried initially what it would be like for this news to go public, but afterwards, I felt as though a thousand hands were at my back. I felt buffered as if all my friends and family were like, “We got you… and you’ve got this. You will get through this and be OK.”